Happy International Day of Persons with Disabilities! Each year, on December 3rd, the United Nations and the World Health Organization come together to celebrate and discuss how far we have come in supporting and advocating for individuals with all kinds of disabilities. This topic is a conversation that needs to happen all year round.
One of the most significant topics of conversation in the disabled community is the topic of advocacy. Individuals with disabilities need champions who understand their unique needs and speak up for getting those needs met. As a therapist who works with children, I have a particular interest in providing support and guidance to children with disabilities and their families. For parents and caregivers, you may not know where to start in advocating for your child or even teaching them how to advocate for their own needs. The following are some basic pointers to get started.
1. Build positive relationships with providers and professionals. Approaching your interactions with others in a friendly manner is easier than having an adversarial relationship.
2. Know your rights. There are organizations that can help ensure your rights are being protected—more information to follow.
3. Keep records.
4. Prepare and plan ahead for meetings and appointments. Have a list of needs to address or questions to ask so you don’t forget in the moment.
5. Get information and decisions in writing. Be sure to read the paperwork you are given.
Here are some helpful organizations and resources for advocacy support in different areas:
- IEP/Educational Support in Missouri MPACT: https://www.missouriparentsact.org
- IEP/Educational Support in Kansas Families Together: https://www.familiestogetherinc.org
- The Disability Rights Center of Kansas: https://www.drckansas.org
- Missouri Protection and Advocacy Services: https://www.missouriadvocacy.org
Here at Embark, we have many providers who work with a lot of individuals with disabilities, as well as those with autism or ADHD. We have a lot of experience and resources to support the mental health and behavioral needs of kids, teens, and adults who identify as having a disability. Please reach out with any questions or to speak with someone about getting matched with a provider.
